Rare Disease Day

Well, all week I have been working on absorbing the ‘healthy’ news into my body as best as I can. What does it mean for me to be a healthy person? What can my future look like now? It’s all so surreal.

I’m certainly grateful for it! In general, I’m feeling lighter this week, which I’m trying to soak in. Another reason is because the bills are starting to roll in for all the tests I had last month so I’m hoping that doesn’t get out of hand. I’m still gauging this new insurance, so fingers crossed.

I’ve had a lot of people randomly reach out to me this week with support, a gift, and kind words. I don’t know what I have done to have such a kind and wonderful support system, but I promise you that every single act helps keep us going. Thank you.

Alas, the main point of today’s post is to spread the word. Tomorrow, Feb 28th, is Rare Disease Day!!

One in 10 people (300 million!) are diagnosed with a rare disease. Patients know their bodies and they know when something is wrong, so this day was created to spur doctors “to investigate a little further when they have a patient with multiple symptoms that can’t be explained.”

If you are feeling extra generous, please support the Vasculitis Foundation by clicking on the graphic above, or get yo’self one of these very fancy “Rare Disease Day” shirts (vasculitis is the umbrella category of my autoimmune). You’ll be stylin!

The rare disease journey is not an easy one, and I’m sure that every single one of those 300 million people has a story to share. I’m just one of the few that voices mine; and you are the kind folks that read about it!